What Does Eating Gluten Free Mean?

by Sue N on August 5, 2009

Last week I saw a woman on a gluten-free diet eat half a piece of regular cake because she was feeling left out. This week I read a message from a Mom who was concerned about giving her child a medication that had gluten-free ingredients and was made on a dedicated line because there was gluten in the factory.

These women represent the two extremes of attitudes about a gluten-free diet. I don’t think either attitude is healthy. Eating just a few bites of a wheat-based cake is enough to do damage to the small intestine of someone with celiac disease. Holding back on a medication because of a tiny possibility of gluten contamination is putting unreasonable limits on the diet.

Here’s my definition on what eating gluten free means:

  1. Avoiding products that contain wheat, rye, barley, or the related grains, including commercial oats that unavoidably contain wheat and barley.
  2. Understanding which products that may contain ingredients derived from wheat, rye, and barley are so extensively processed that they do not contain significant amounts of protein.
  3. Reading every label every time I buy a product.
  4. Not eating a product with ambiguous ingredients unless I call the manufacturer.
  5. Enjoying what I do eat.

What does this mean in practice?

  1. I don’t intentionally eat gluten-containing ingredients ever.
  2. I eat maltodextrin and natural flavors and distilled vinegar and alcohol and pure oats without worry because I have learned that they are safe for me.
  3. I read product labels when I shop.
  4. I don’t buy products with ambiguous labeling like seasoning or vegetable broth without including the sub-ingredients. Sometimes I contact the manufacturer to complain with the hopes of improving the labels.
  5. I make sure I take something I can eat in my purse when I go to events so that I don’t get overwhelmed by feeling left out.

This didn’t happen overnight. I learned about ingredients from the scientific advisory panels of support groups and from my own research. I still ask a lot of questions and I look up ingredients. It takes extra time to read ingredient lists, but I’m pretty good at it now and it takes less time than when I started.

My goal is to help other people find a healthy balance so they can thrive, not just survive, eating a gluten-free diet.

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